Macmillan Living with and Beyond Cancer Programme

LWABC team

What does the project provide? 

Pennine Acute Hospitals NHS Trust and Macmillan Cancer Support have come together to address the cancer care challenges faced by patients and their carers.  They have created a “Living With and Beyond Cancer Project” which aims to improve cancer services to meet the needs of patients. UPDATE - this 2 year programme came to an end in July 2017

This will entail implementing the “Recovery Package” (see diagram below) across all cancer services. The Recovery Package is a combination of different interventions, which when delivered together, will greatly improve the outcomes and coordination of care for people living with and beyond cancer.  These are:

Click for further information on the Recovery Package

The aim of the overall Macmillan Living With and Beyond Cancer Programme is to create sustainable and equitable services to ensure the best outcomes for the population of Pennine Acute Hospitals NHS Trust and to enable people to live well with and beyond cancer.  

This transformational programme focuses on redesigning follow-up pathways, initially for head and neck and urology cancer patients, with roll out across other tumour groups within a two year period.

This includes the development of supported self-management pathways for those patients who are in receipt of palliative care, those who have been treated with curative intent, whose treatment has been completed and in whom the acute effects of treatment have subsided.  Supporting patients to self-manage their own health and wellbeing can meet unmet needs and reduce demand on services, where appropriate.

The programme will be supporting the huge cultural shift that is required to make this programme a success.

The Trust has high expectations of its Lead Cancer Clinicians and Clinical Nurse Specialists (CNSs) in owning, delivering and subsequently sustaining the project outputs.

Who will patients meet?

The Trust and Macmillan Cancer Support believes that central to the success of this transformational programme of cancer services is to involve service users and carers by learning from their experiences.  The programme aims to establish a consistent yet flexible approach to user / carer engagement. 

The aim is to influence the overall direction and quality of services by giving a meaningful voice – at all levels- to service users and carers in order that they can support the Trust in making improvements to cancer care delivery.  

Patients and carers wishing to get involved will be offered a ‘menu of opportunity’ in terms of how much input they want to give.  This may involve providing their patient story, which with permission will be shared with Macmillan Cancer Support and Pennine Acute Hospitals NHS Trust or they may be happy to complete a survey or questionnaire which has been developed as part of the project.  Their details will be held on our database of users and contacted with opportunities throughout the project that they may wish to be involved in.

People affected by cancer who would like to find out more should contact Emily Sidebottom, Macmillan User Involvement Coordinator, tel: 0161 656 1250, email: emily.sidebottom@pat.nhs.uk

When is the service available?

The Project Team are available Monday to Friday, between the hours of 8am to 5pm.

Where is the service provided?

The Project Team are based on the Top Floor of Chalmer’s Keddie Building (rooms 24/25 and 26) at The Royal Oldham Hospital, Rochdale Road, Oldham, OL1 2JH.

Department contact details

Telephone Numbers:

0161 656 1251 (Internal extension: 71251)

0161 656 1250 (Internal extension: 71250)

0161 627 8699 (Internal extension: 78699)

Key staff/consultants

Debbie Ashforth - Macmillan Transformation Programme Lead

debbie.ashforth@pat.nhs.uk                                                                                                           

Helen Wrench - Macmillan Quality Improvement Facilitator

helen.wrench@pat.nhs.uk                                                                                                 

Emily Sidebottom -  Macmillan User Involvement Coordinator

emily.sidebottom@pat.nhs.uk

Anne Ogden – Project Administration Support

Anne.Ogden@pat.nhs.uk

User Involvement - Pennine Acute Macmillan Patient Engagement Representatives (PAMPER)

The Trust and Macmillan Cancer Support believes that central to the success of this transformational programme of cancer services is to involve service users and carers by learning from their experiences.  The programme aims to establish a consistent yet flexible approach to user / carer engagement. 

The aim is to influence the overall direction and quality of services by giving a meaningful voice – at all levels- to service users and carers in order that they can support the Trust in making improvements to cancer care delivery.  

Patients and carers wishing to get involved will be offered a ‘menu of opportunity’ in terms of how much input they want to give.  This may involve providing their patient story, which with permission will be shared with Macmillan Cancer Support and Pennine Acute Hospitals NHS Trust or they may be happy to complete a survey or questionnaire which has been developed as part of the project.  Their details will be held on our database of users and contacted with opportunities throughout the project that they may wish to be involved in.

People affected by cancer who would like to find out more should contact Emily Sidebottom, Macmillan User Involvement Coordinator, tel: 0161 656 1250, email: emily.sidebottom@pat.nhs.uk

To view profiles of our PAPMER group members - click here